Thursday, March 8, 2012


My parents have came down from Indiana to be with us here for a few days. Times are hard. They are are going to wean her off the vent so she will be able to come home with hospice. They are going to be doing less labs and sticks to her... We are honestly really confused on what exactly they are doing.... all we know is that we are going to get her off the vent and bring her home. But right now we are waiting for more family members to be here and we are all going to pray for her together. I Love Chloe so so much! They put the vent rate down from 40 to 20 and she is handling that pretty well.


  1. Oh Megan, my heart is hurting so much. I will say my best prayers for sweet Chloe. I pray that you have the best family support and that you are surrounded by those that love you. God has plan for Chloe. I pray that you get to spend many precious moments with her. I think you are awesome for opening up your phone to everyone. That was amazing. I love you.

  2. Megan & Travis~
    You two were blessed with a beautiful daughter. God picks the BEST for special children. He must have knew, you two would love and understand his plans for Chloe. I couldn't imagine the hurt YOUR hearts feel right now, so many of us following Chloe's blogs, hurt too. But, no where close to what you are. You are amazing and truly inspiring, especially your sweet Chloe! Her strength to carry on. I will continue to pray for Chloe. I pray for NO more pain and full comfort. I pray for you, Travis, and your family to have strength through this difficult time. You and your family are loved by so many and that will continue! Thank You Megan for what you do and who you are! Love and prayers from Indiana!!

  3. Megan&Travis,
    I just read your story that I happened to see on facebook. My heart goes out to you and just wanted to say I will be praying for your baby girl and your family. We have a mighty god who can heal. I will see to it we put her on the prayer list at my church. God bless you and your family.

  4. Hilda Cartlidge Troye

    Megan I was with out a computer for a couple of days and found out the set backs last night. I am so sorry and continue to pray for Chole, you and Travis. I cannot imagine what you are going threw but you are so strong and have great faith in God and he is always with you I have had your family put on some prayer list here is Louisiana. God bless all of you.

    1. Adding my prayers for sweet Chloe and her very special parents. Jesus please hold this family tight. Comfort, peace, healing, trust in your divine plan - please bring all this Jesus. Amen.

  5. Praying for peace and comfort for Chloe, as well as for you and Travis. I cannot imagine what you are going through, but I'm sending love your way. God will provide strength for you all.

  6. I will pray for peace and comfort for you and little Chloe. It truly breaks my heart to see these sweet angles suffering with this terrible disease. Stay strong and continue to keep faith! {)i(}

  7. Megan, I am grateful to have come across this blog through the love of the EB Awareness page. I am praying for you, for Travis, and for sweet Chloe to have the strength to accept God's will for you all. I cannot imagine your pain, but I wish you hope and peace. You will be in my heart. Much love from Cleveland to the Joneses. xoxo

  8. Thinking of Chloe... I hope she is getting comfort
    Sending you big hugs and praying for that beautiful girl!