Today one of Chloe's primary nurses recommended a couple pediatricians so I am going to give them all call this following a week and maybe even thinking about setting up and interview to talk to them... See what one will be more willing to want to learn and take care of an EB baby, and who we personally think will better suit our needs with Chloe. Such decisions to make. one Dr is in our town, and the other is slightly out of town. So we have that to be thinking about, as well as things we are going to need for Chloe's care when she gets home.... gotta re arrange our room for the bassinet, and find some fabric and hem it for it because she may be a messy baby because all the vaseline and it getting everywhere as well has it being padding for anything hard she may have to lay on ( like her diaper changer) have to figure out a new routine, I am going to try and keep her on the same schedule for when she eats like she has now, she gets fed on the 8, 11, 2, 5 hours, so every 3 hours, so that will make things a little easier. and figure out a bandage change time for home, specially if she has a home health nurse, I may do it during the times the nurse is there so she can see Chloe with out the bandges on and be able to look over. So much to think about!!! the reality of her coming home is getting closer and closer. I cant believe it!!!!
If any of my EB friends have any tips for home care, and general products being used, please tell me!!! I feel like there was something else I needed to ask my EB friends about.... but I cant remember!!!
Chloe and Daddy
Loving her passie
Where did my pass go