Monday, February 6, 2012

That's our Chloe

     Well today me and Travis went to the hospital nice and early to be their for her first time feeding...
     When we went in there, the nurse was in a gown and mask and was taking it off, and we were thinking "Oh my goodness, whats going on!?" And I remember looking over at Chloe, and then I saw an oxygen hood. Me and Travis hurry over to her crib ask okay, whats going on...
     Chloe's finger where she had a blister at, was very red in color, and she had a fever of 101.3 and was dropping her oxygen. A day or two ago blister on her finger got lanced, but I lanced it again because I realized that there was more fluid in it, and I noticed that when I pressed on her fingernail, fluid would come out, so I'm assuming that there is a blister under her nail. the nail looks like its going to fall off, I just don't know when, but I can't wait for it fall off. So she had blood drawn this morning and she is on antibiotics vancomycin and gentamicin, her usual.
     If hearing all that wasn't enough.... I was looking at Chloe and I was trying to giver her, her passie, and she didn't want it, so I went to lay it down in the crib with her, and I look at her chest and the clamp that goes around her broviac, was just sitting there, and I picked it up and showed Travis and he didn't understand why it was off. Well the nurse comes in and I showed her the clamp and she is looking at Chloe she says "There  should be no that can come off unless..." and  she grabs the broviac, and says "unless it comes out" and she is holding the broviac! It slipped all the way out! They shouldn't be able to fall out!!!!
     They give her an IV in her head, and they say they are going to try and put a PICC line again at shift change-3 O'clock. Well Travis sadly had to return home to work and wont be back until this following weekend.
     I waited until 6 O'clock to be able to return to the nursery to see Chloe. They could not get the PICC line. as of right now, she has an IV in her head again, and tomorrow at 7am they are taking her back for surgery to place another broviac line. Its what needs done, but im so frustrated because that means they are going to have her on the vent again, and she will be on it for a couple days before she gets off of it, and that means she wont be able to eat for the next couple days. Hopefully she gets off the vent fast, and by the end of the week she is fine and we will be able to feed her. I am thankful tho that this time when she gets put in the vent, the nurse practitioner will be there, and so will the nurse because they are doing it right there in the nursery before they take her back to make she no tape is on her skin and what happened last time doesnt happen again.
     Sadly its like Chloe, for every two steps forward, its one back, but it could also just be the devil trying to get me down because we hear the news we have been waiting to hear for 2 months, and he is trying to bring us down, but  thats not going to happen. We have been though so much already to let that happen.  We have faith in the Lord. HE will have Chloe come home when he feels is the right time.

Psalm 40

 1I waited patiently for the LORD; and he inclined unto me, and heard my cry.

 2He brought me up also out of an horrible pit, out of the miry clay, and set my feet upon a rock, and established my goings.

 3And he hath put a new song in my mouth, even praise unto our God: many shall see it, and fear, and shall trust in the LORD


  1. I am so sorry for the step back today but keep the faith and God will take care of her and the devis will not win. You are so strong don't know you but I do know you are a wonderful person. God Bless all of you.
    Hilda Troye

  2. I'm sorry for the set back, never forget that God is always with you. Love you <3

  3. As a parent of a child that has spent time in the nicu, i can tell you it will seem like they are good one second and down the next. We found out we had to watch how much morphine they gave him because they were wondering y he would not move or be responsive and it was cuz they kept given him morphine without knowing if he needed it. Trust me she will let you know if she is hurting. I love you guys and i am praying for all of you.

    love, onda

  4. Sweet Chloe is in my prayers and heart every day. I am so sad to hear about the set back and am praying for her swift recovery. You and Chloe are both so strong and brave and are inspirations to me. God bless you, you are always in my prayers.


  5. Dear Megan: Thanks for the update on your precious daughter. I will continue the prayers for sweet Chloe. JEB is a nightmare but please keep your chin up and just be there for Chloe. You will be the one who determines what is best for your baby. You will learn very fast, what to do and what not to do. Just take it one day at a time. Love and Peace Leah and Tabby's Nana